Privacy Policy


The user must carefully read this privacy policy and decide freely if he/she intends to provide his/her personal data to the UshTher project before communicating data.

Fondazione Telethon is committed to ensure the protection of your Personal Data and your Privacy. To better protect your Privacy, we provide this page explaining our online information practices, in accordance with the Italian and European laws (D.lgs. 30 June 2003 n. 196, modified by D.Lgs 101/2018 and GDPR Regulation 2016/679).

This document provides information on data processing of the personal data collected by the Telethon Foundation through the present website ( The purpose of the privacy statement is to provide maximum transparency with respect to the information that the Site collects and how it uses it.

By using our websites and/or our online pages available on platforms and social networks, you agree to the conditions of this Privacy Policy. If we change our Privacy Policy, we will post the changes on this page to keep you informed of the information we collect, how we use this information, and whether the information is shared with other parties.

Who is responsible for processing your data?

Data Protection Officer: Dr. Michela Maggi Email:

What terms do we use in this Privacy Policy?

  • We use the term “User(s)” to refer to the user(s) of our websites, online pages and services.
  • We use any of the term “you”, “your” and “yours” to refer to the User who is reading this Privacy Policy.
  • We use any of the terms “we”, “us”, and “our” to refer to Fondazione Telethon.
  • We use the term “Personal Data” to refer to personally identifiable information about you.

What data do we collect?

We collect the identifying data of users and visitors of the website who wish to request contact information (name, email address) and register to receive information through a newsletter (name and email address).

We monitor the non-personal information collected in our server log files. This information includes for example number of visitors to the site, most popular pages, operating system, and browser type. We use this information to help us improve our website and enhance your viewing experience. The server log files do not collect Personal Data since all data above-mentioned is anonymized.

We will not disclose, sell, rent or exchange such personally identifiable information to any other organization or entity unless you are first notified and you expressly agree to it, or as otherwise required by law.

For what purpose do we collect Personal Data and for how long de we store your Personal Data ?

We will not use your Personal Data for other purposes than those stated in this Privacy Notice or for the purpose specifically indicated when we collect it. The legal basis for the processing of your Personal Data is your consent. You have the right to withdraw consent at any time, without affecting the lawfulness of processing based on consent before its withdrawal.

How long will we keep your data?

The personal data provided will be retained for as long as no request for deletion is made by the data subject or for the years necessary to comply with legal obligations.

External links

Fondazione Telethon is not responsible for the contents or reliability of any other websites to which link is provided and do not necessarily endorse the views expressed within them.
Fondazione Telethon does not monitor or review the content of other websites which are linked to from this website.